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Hello wonderful people. Many of you know of my daughter Claire and her Tuberous Sclerosis disease. For those who are newer to my blog, she started having face twitches (small seizures) when she was 1 month old. After testing and bloodwork we discovered her disease: a genetic disorder that causes tumors to grow on the brain, heart, kidneys, eyes and lungs. At 5 months old she had a brain tumor removed and from then had been seizure-free for 1 1/2 years.
Starting about a month ago, her seizures have come back. I am asking for your prayers that this new medication that we will be starting her on will control the seizures. For those who want to read about it, here is a link to my family blog:
Starting about a month ago, her seizures have come back. I am asking for your prayers that this new medication that we will be starting her on will control the seizures. For those who want to read about it, here is a link to my family blog:
http://thedriggsfam.blogspot.com/2010/04/prayer-for-claire-seizures-are-back.html
80 comments:
I'm sorry to hear that the seizures have returned. Prayers are coming your way!!!
Bless her heart...and yours! So sorry to hear you're going through this. We will keep your family in our prayers.
I'm so sorry Summer!
Summer, Claire is adorable, love her locks, her smile is infectious. We'll not only pray but light a candle in her honor. We hope the new meds work wonders and Claire can continue enjoying life to the fullest.
Huggins to you all.
Pat M
Oh, Summer, I'm so sorry to hear this. You are all in my thoughts and prayers
your darling daughter and whole family will be in my thoughts.
I'm SO sorry to hear that your daughter's seizures have come back. I'll be praying for you all.
Love & Hugs
Judi xx
My thoughts are with you and your family especially Claire.
:-)
all my prayers are for you. hugs
Summer, your adorable little Claire (and the rest of your family) will be in my thoughts. Here's hoping that the new meds will knock out the seizures.
Biggest Hugs,
Lelia
Heartbreaking! My thoughts and prayers are indeed with you.
We will add Claire to our prayer list, and you, too. I can't imagine what you are going through.
Oh bless her and you, thinking of you and sending some some cyber strength to help you through xxx
Oh sweetie, i'm so sorry. My prayers for her and your family through this.
Stumbled upon this blog by accident. Sorry to hear about your child and will keep her in my thoughts.
I had a brain tumour many years ago-hemangioblastoma. The important thing for the sufferer, is that it's diagnosed, removed and that you find things to enjoy and keep your spirits up.
God Bless.
Sending lots of prayers and hugs to you!
So sorry to hear this, Summer... your family will be in my thoughts and prayers.
beautiful girl, breaks my heart! will pray for you all!
I'm just so sorry to hear this Summer, but you know you can count on me to keep you guys in my thoughts.
You and your family are in my prayers.
We don't know eachother but there will be prayers coming from me.
Summer -
I truly hope that the medication helps her. I know how distressing it is to see someone you love suffer. I will keep Claire in my prayers. God Bless.
Elaine Allen
Summer, you have my prayers. I'm so sorry that your darling little girl is going through this. Your designs are a bright spot in my life, and I love them. Thanks for sharing your beautiful daughter and your talents with us.
Aww bless your hearts. We'll keep you all in our prayers.
Summer, thoughts and prayers for your daughter and the whole family. Also, for the doctors to be able to find the right medicines and treatments for her.
Claire will be in my thoughts & prayers :) With Gods love, you guys can get through this!
I can hardly imagine what your family has gone through/is going through. My thoughts and prayers are with you all. She's just beautiful, and obviously has a fighting spirit within her.
Summer, I'll have her in my prayers everyday.
We will keep your beautiful family in our prayers. Good Luck!
Hi
Not sure how I found your blog as I haven't tried digi scrapping. I would love to do it, but have no clue how to start.
Anyway, just wanted to drop a note to let you know your little one will be in my prayers. She is just beautiful.
Love and hugs
Liz
We will be praying your Claire & your family!!
I have put Claire's name on the Temple Roll at the Provo Temple. I know Heavenly Father will give your family the strength you need.
oh i hope that all these prayers work and the new meds. Hugs Sue xx
Summer - I am so sorry to hear about the return of her seizures. My best thoughts and wishes are with your family.
I am so sorry to hear about your sweet daughter. I will definitely keep her and you and your family in my prayers. Good luck.
I'm so sorry. Our prayers are with you.
Praying for you and your family! :D
I'm so sorry. I've prayed already.
Please accept my best wishes and prayers for your daughter and you.
Tress
I will keep Claire and your family in my prayers. Bless you all.
Sending {{{{{{HUGS & PRAYERS}}}}}} your way. Hoping the new meds will work.
Hugs,
PattiM
{Pattie's passion}
I Scrap So All Moments Are Remembered!!
In our family's prayers too!
Such a bonnie little thing. Praying that her new meds work
Said a prayer for her and your family! Take care...hugs!
hi summer,
i realy hope new meds help , send huggs and prayers huggs jo x
of course you have our prayers. even all the way over here on guam. be strong and positive. may god bless her, you and your family.
I just found your blog today. My prayers are with you and your daughter! Thank you for sharing your talent and offering your kits. I love them! Best wishes.
Prayers for Claire and you are on the way. Hugs.
Sorry to hear about Claire, I hope the new meds work. Claire and all of your family are in my thoughts and prayers.
Lindi
So sorry to hear about the seizures returning, I do hope the new meds work.
Anne x
we are saying prayers for your sweet girl. ox
I am sorry about her condition. We are praying for her and your family.
May the Lord take your family in His arms and walk with you through darkness towards the light. Amen.
You will be in my prayers!
So sorry to read this. My thoughts & prayers are with your little girl and the rest of your family
Sending hugs and prayers for your beautiful daughter and your family.
Thank you for showing a picture of her. Claire, you and your family are now in my prayers. Take care.
Sending you and your family healing thoughts. Brightest blessings to your little girl.
Lin
so sad to hear your news, thinking of you
so sorry to hear about the return of the seizures.i will say a prayer for claire and your family
take care of yourselves
lalkygirl[tracey x]
I just read your blog & I'm thinking of your family & your little girl right now. You'll be in my prayers tonight. Good luck with everything. She is so sweet!
I will definitely pray for little Claire and your darling family.
Love and Light to your little girl Summer! She is in our prayers
My prayers are with you for your precious little girl. When it comes to our children we would do anything and everything in our power to make it all better and when that can be done we so helpless. We look to our "PRAYER WARRIORS" for a little comfort.
Melisa
http://jacobshope.blogspot.com/
So sorry for you little girl! I will pray for her and for you too
I will be praying!
Many prayers for your daughter and your family!
life is soo cruel i wish and pray that it works for her she is such a sweet heart.
I am so sorry to hear this about your dear, sweet daughter. I can understand your pain as our daughter was just diagnosed with MS this year. There are no words for a mother's broken heart over hearing that her child has an incurable disease. Only prayers, prayers and more prayers can bring us the strength, wisdom and peace to tackle each day we have with them.
My heart goes out to you.
Much love,
Nancy
I hope with all of my heart that everything works out for you and your beautiful little Claire and the rest of your family.
With my very best wishes
Keryn
How hard, she will be in my thoughts and prayers!
Thinking of you and your sweet girl. You and Claire will be in my thoughts and prayers. My heart goes out to you! Sending my love your way.
I am very sorry about the health of your little girl and I will pray about it with my family
Summer, I will pray for your precious little Claire! Praying for healing, miraculous healing!
I'm sorry to hear that.
I'll be praying for her and your family.
Dear Summer. Just found your blog and read about your beautiful daughter. I have a little girl myself. What pain it must cause you to see your angel go through this. My thoughts and prayers are with you and Claire. Cynthia
I am SOOOO sorry to hear that her seizures have started again. I have my own baby Claire, and can only hope and pray that yours will be healthy and happy soon! Good luck with the medication.
I said a prayer for your daughter and your family.
so sorry to hea about your daughter :'(.my prayers to your adorable daughter.be strong in God words
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